Tuesday, October 25, 2011

Had a bit of good news (if you could call it that). Finally have a diagnosis for my ailments. Few months back had a colonoscopy and to cut a HUGE story down I was diagnosed with microscopic colitis. After taking medication to treat this condition I have had amazing results. No more trips to the loo like 20 times a day for me, yes smooooooth sailing for this girl. Another 'mysterious' condition which chose to fall in my lap 6 years ago has also been recognised. People who know me well also know the stuggles I have dealt with. Many frustrating mis diagnosis led to medications on a mile long list. Prednisone being the only one which gave me any results. Which in the end provided the clues to finally figuring out what it was, Polymyalgia Rheumatica. This is mostly an autoimmune disorded that affects elderly people, however it can sometimes appear in younger adults like myself. Here is a link : en.wikipedia.org/wiki/Polymyalgia_rheumatica

Anyway finally knowing what it is has given me some hope for the future also. Knowing why the muscles in my body stiffen with pain and cause me great fatigue and disability is essential to treating it also. Unfortunately prednisone which is a powerful anti inflammitory is the only cure for this condition. Without it I will not be able to function normally, and having 3 kids to run around after, well you know! Getting onto the lowest dose my body needs to remain in remission is now my goal. Also living again! Not having to go on and off and on and off the prednisone is much better for my health and eventual permenant remission. It can last anywhere from 2-10 years. Already served a 6 year sentance so fingers crossed I am on the home stretch to recovery ! It feels like a GREAT weight has been lifted and now I can truely buckle down and work towards building the future I want. Living well, exercising, meditating, gardening, going back to work, and studying. Yep I want all of it. Today I enrolled in Open university Melbourne to study a Bachelor of Science. Woha I know big committment. However I am taking it slowly, and figure it will be good for my overall wellbeing. I am sick of dreaming about a better life, better future. I want to make it happen. Choosing to accept that for now there are many things I can't control, like my weight gain which has been a massive side affect from taking prednisone for all these years. Its not good, and I hate it at times. But really? I don't want to let it get me down. I just want to give myself permission to accept it and take positive steps towards making it right again. HOW? Well this blog is a start, it is a little outlet for me to vent, to share and to inspire (hopefully) all of us to make each day count. It doesn't have to be an overhall everyday, like counting calories, joining a gym 5 days a week etc... It just has to be a commitment to making small changes daily. I began by drinking dandelion tea, adding cayeene pepper and today drinking more water! Today I have enrolled in Uni, tomorrow? Well thats for you and me to wait and see heheeehehehe, over and out!

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